Scottish Huntington’s Association (SHA) is an independent charity headquartered in Paisley, supporting people and families affected by Huntington’s disease across Scotland. Its services include specialist nurses who help adults and their families manage symptoms and access care, alongside a national youth service supporting young people affected by the condition. At the time of the project, SHA’s services reached around 5,000 individuals through 12 locations, with funding from public bodies, charitable funders and commercial organisations.

SHA lacked a central system for collecting information across its locations and services. Staff manually combined data into spreadsheets, making reporting slow, prone to errors and often outdated by completion. Preparing information for funders required at least four weeks’ notice, followed by chasing and compilation. Limited visibility also made it harder to identify gaps in support for individuals and families. The charity needed an affordable, adaptable system that could simplify reporting, inform planning and help staff coordinate services without diverting excessive funds from frontline work.

One Beyond developed GEORGE, a bespoke data management system that captured and consolidated information across SHA’s services. We delivered a working prototype within four to six weeks and introduced family network mapping to help staff understand connections between people receiving support. Predefined reports provided quick access to demographic information, service usage and client feedback, while outcome tracking helped nurses assess their work and identify unmet needs. The system reduced report preparation to minutes and gave SHA clearer evidence for funding applications and strategic planning.